Showing posts with label medical. Show all posts
Showing posts with label medical. Show all posts

Wednesday, January 29

Twelve Reasons to JUST TRY a Gluten-free Diet for ONE month

Could you be celiac or gluten intolerant and not know it? Check the following list of tell-tale signs and take the challenge of an entirely, 100% gluten-free diet--for just one month to find out for sure.

Gluten-free? Isn't that just for my weird vegan crunchy-granola friends? Not if you identify with any of the following indications. If you or a close family member has experienced one of these symptoms or diseases, a gluten-free diet can be ameliorating or even curative. 

As I said recently to a college friend diagnosed with an IBD that would cost him $20,000 a year for the rest of his life (hopefully 50+ more years) in medications, 
"Hey, isn't it worth A MILLION DOLLARS to try it for ONE MONTH?" 
(This logic also somehow resolved his worry that "it's so expensive to go GF"! Go figure.) If it doesn't fix it, you're a month gluten-less. If it does, you're an entire lifetime richer. 

Why haven't I heard about this before? Unfortunately, there is no prescription drug company lobbying for more studies about how people can stop taking their drug and save millions by changing their diet. Surprise. 

So who says that it will help? The links that follow are a combination of Mayo Clinic publications, University studies, MDs and PhDs who have published on the topic as well as a sheer mass of anecdotal evidence. Please feel free to do more research and post anything you want to share as a comment. 

Don't I have to wait for a diagnosis? Terina was once faced with a friend who had tried the GF diet and had immediate relief from her lifetime chronic pain. This result prompted her to get a test to find out "once and for all" if she was gluten-intolerant. She called Terina in tears the day of the test and asked, "What am I going to do if it's NEGATIVE?! Go back to being miserable?!" Terina replied, "ARE YOU KIDDING ME?! USE YOUR BRAIN!" Just kidding. But seriously: false negatives, along with yet un-test-for-able gluten sensitivity and gluten intolerance, are a huge problem in the medical world. This girl right here had a falsely negative skin biopsy, blood test and stomach scope before a fecal test (through EnteroLab) and cheek swab finally came back blatantly positive... 15 years of suffering later. Thanks, medicine. It's up to you, of course. 

The twelve tell-tale signs: 

12. "Addiction" to carbs. Higher gluten in wheat because of recent food processing changes (a la Wheat Belly's author, Dr. William Davis) makes modern wheat a completely different, highly addictive grain than what human digestion systems have been processing for thousands of years. 
11. High blood sugar (pre-diabetic or diabetic) or hypertension or low blood sugar. Type 1 diabetes is an autoimmune disorder, which we'll read more about further down. 
10. Asthma, arthritis, hypertension, fibromyalgia, tension headaches and migraines or temporomandibular joint (TMJ) disorders: more autoimmune disorders, along with a few "garbage" diagnoses when doctors just give a name to a pain.
9. Chronic fatigue and/or anemia. So tired you fall asleep at stop lights and have to call a babysitter to watch your kids while you're home because you keep falling asleep in the middle of board games? Terina was before her diet change. Celiac disease affects your ability to absorb iron--so no matter how many supplements you take (or how many cans of spinach you gulp, Popeye-style, before you give blood) you can't increase your hematocrit levels.
8. Any other autoimmune disorders (Lupus, alopecia, rheumatoid arthritis, vitiligo, multiple sclerosis, autoimmune hepatitis, and about 30 others I can't pronounce). "I would suggest that if you have an autoimmune disease you get tested for gluten sensitivity, and if you're gluten intolerant, you should get screened for autoimmunity" says this article by MD Amy Myers (read the whole thing if you have time, it's really comprehensive).
7. ANY Irritable Bowel Syndrome (IBS) symptoms (diarrhea, constipation, bloating, heartburn), and any Inflammatory Bowel Diseases (IBD) including Crohn's and Colitis (detractor here disproved by 100+ posts of UC non-celiacs here). This is an obvious one, people, it's even on wikipedia.
6. Thyroid/ Graves' disease/ Hashimoto's (more autoimmune disorders that aren't usually lumped with the others). Thyroid disease is another that many doctors still refuse to connect to gluten. Give 'em a couple years.
5. Odd or uncontrollable weight loss OR gain, or inability to lose or gain weight despite diet and exercise changes. Your body is calculated to keep you alive, but it starts wigging out when you're poisoning your own digestive tract ("wigging out" being a technical term for losing or holding onto fat stores or muscle tone in response to nutritional deficiencies--ie, your body won't lose fat when it's essentially starving.)
4. Skin rashes, including eczema and psoriasis: ever had the itch to, you know, tear your skin off your body? When it seems like a Niagara Falls of lotion won't fix it? Been there. Think about how you could take the family to Disneyland just from the lotion savings if going off gluten fixes THIS problem! 
3. Mental disease/disorders: schizophrenia, anxiety, depression, anorexia/bulimia. This connection is becoming better researched, but it's amazing how your own family tree and a little medical history can enlighten the subject. Is it just our family's curse that every adolescent girl gets anorexia? Might be connected to gluten.
2. Infertility (or here, including multiple miscarriage, especially before you try IVF) (try searching "go gluten free and get pregnant), missed/irregular or painful periods: "Clinical studies have shown that women with untreated celiac disease have a very high rate of infertility with difficulties in conceiving," "gluten can make your period absolutely miserable" and "adults may also have aforementioned symptoms but could also have unexplained pain, anemia, depression or anxiety, seizures, osteoporosis, infertility, canker sores, rash, migraines, irregular menstrual periods, poor teeth enamel or numbness in the hands or feet."
1. Understanding your friends/family: if you don't have gluten intolerance, yay. Chances (and statistics) are that your mom, friend, spouse, child, coworker or student will. Nothing shows support like co-suffering, and the amount of empathy you gain may change your experience a little bit next time you have to alter a birthday party or work gathering menu for the weird-GF-one-out.  

So how do I do it? Please save yourself the pain and money and don't just go buy every alternative gf bread and pasta on the shelves. This doctor explains why, but the basic reason is that when your intestinal tract is already full of holes, other grains will fall "out" of it just as easily as gluten. To heal, you need to start over with an entirely natural (only food God made--veggies, un-messed-with meats, fruits, water) diet. Too much, you cry? It's only a month. Remember that time your buddies dared you to stay off facebook or walk a mile everyday for a month (no? maybe I have weird friends...)? Remember that time you kept a crazy weird New Years Resolution for a month? You can do it. Let us help! Post if you're thinking about taking the challenge.

Click on the "a newbie?" link on the side of the main page for easy starter foods, including 100 GF foods you can eat now

Friday, September 20

Infertility and Celiac Link

Living 
Without
magazine is a great find for gluten-free (and other specialty) dieters. It recently had an article about the link between infertility, endometriosis, early menopause, irregular periods, absence of menstruation, multiple miscarriage, rates of C sections, low birth-weight babies, stillbirth and CELIAC.

It's worth it to read the whole article, but one excerpt I liked is as follows.

"According to RESOLVE, the National Infertility Association, one in eight couples is affected by infertility, defined as the inability to conceive or carry a pregnancy to term after 12 months of trying. Any one of a number of hormonal or anatomical problems in either the male or female partner (or both) can cause infertility. In a fairly large number of couples—about 20 percent—there’s no identifiable cause (i.e., unexplained infertility).
According to a recent study, many of these women may actually have celiac disease. When researchers at the Celiac Disease Center at Columbia University screened 188 women with infertility for celiac, there was no higher risk of the autoimmune disorder until they narrowed it to just those with unexplained infertility. Of that group, almost 6 percent had celiac disease—a rate nearly six times higher than expected—raising the possibility that “celiac is an important association of unexplained infertility,” the researchers wrote."
So many women are suffering unawares, but there is hope for better diagnosis process. At least one IVF facility in the West now recommends all beginner IVF patients to try a 6 month GF diet before beginning other fertility treatment.

http://www.livingwithout.com/issues/4_24/why-cant-we-have-a-baby-3184-1.html?pg=1

Thursday, April 18

Celiac Disease v Gluten-Sensitivity

Celiac disease: Celiac disease is a medically diagnosed autoimmune digestive disease, which interferes with absorption of nutrients from food and can lead to malnourishment and other conditions. Even a very small amount of gluten contamination can cause an autoimmune reaction including both digestive and non-digestive symptoms, typically appearing a few hours or days after gluten has been ingested. 

Gluten sensitivity: According to the National Foundation for Celiac Awareness (NFCA), the condition affects 18 million Americans and falls within the spectrum of gluten-related disorders. Symptoms of gluten sensitivity often overlap with celiac disease. Unlike celiac disease, gluten sensitivity is not an autoimmune disease and does not result in the same type of intestinal damage.

Thursday, January 3

Unexplained Infertility - 100% success with GF diet

I love studies that prove 100% results.

http://www.reproductivemedicine.com/toc/auto_abstract.php?id=23858

This one was undersritten by Columbia University Medical Center the Center for Celiac Disease

Reported in the Journal of Reproductive Medicine 2011:56: 199-203 conducted by Choi JM, Lebwohl B, Wang J, Lee SK, Murray JA, Sauer MV, Green PH.

"Demonstrating that patients with primary infertility have an increased incidence of celiac disease compared to the general population.  In this study, each woman diagnosed with celiac disease subsequently became pregnant."

Monday, February 27

Schizophrenia and Gluten

More proof from BBC study of schizophrenia triggered by gluten.

Thanks Lisa for the link.

Also, here is the older study link on pubmed for your physicians.

J Int Med 1997; 242: 421-423 This is the study of an individual who had been diagnosed with schizophrenia--whose symptoms were improved with a GFD within a few days. Within 6 mo SPECT scan was repeated and showed complete normalization of brain perfusion.

Wednesday, November 16

Wednesday, November 9

No Celiac Disease in the Blood

"...the type of celiac disease that doesn't show up in bloodwork?" Many of us have experience with this, but too many doctors don't think it exists. Good to see it show up in print.

http://www.huntersvilleherald.com/sports/2011/11/03/battling-back/

Wednesday, November 2

News from the NIH

A little late for the creepiness of Halloween, but The National Institute of Health has these updates just for you.

The Howl about Bowel? Everything you ever wanted to know about bowel control.

Fowl in the Mouth? Study of gluten fighting microbes.

Does your blood GLO? The potential new predictor of CD in the blood.

Read all about it in the National Institutes Summer Newsletter www.celiac.nih.gov/NewsletterSummer11.aspx#1.

"High Prevalence of Celiac Disease in Women With Young Onset Collagenous Colitis"
authored by Ahmed Bedeir, MD, Bhaskar Ganguly, and Mukunda Ray, MD, PhD

This study found young women with collagenous colitis are eight times more likely than the general population to have celiac disease. http://www.marketwatch.com/story/caris-diagnost...rology-2011-10-31

Thursday, September 1

Venus Has Sjogrens... Hmmm?


As you all know, Sjogrens is yet another related auto immune disease. Here is a follow up article to the information coming out about Venus Williams.

Again, struggling to answer the age old question, why so much auto-immune disease?

http://www.healthymagination.com/blog/whats-triggering-the-global-autoimmune-disease-epidemic/

Tuesday, June 21

VACCINES for Celiac Disease in Australia

A sister (the graphic artist, brilliant blog designer, meticulous chef, and reluctant celiac) forwarded me the following link.

Our celiac support group had mentioned this at the last meeting, but I'm still suspicious. It's five years out, but if it's a vaccine, isn't it then a virus? Maybe I'm simplifying it too much.

Interesting and hopeful still.

Tuesday, May 17

Vaccine for Celiac Disease

Here is the latest study on the celiac vaccine from Australia. Thanks Angelina for forwarding it.

http://www.wehi.edu.au/site/latest_news/coeliac_disease_vaccine_shows_promising_results_in_phase_i_trial

I'm mostly excited. However, a little dubious this week as I'm watching friend's child battle a staph infection from a hideous case of chicken pox (contracted from the vaccine).

Yet, I am HOPEFUL!


Wednesday, May 11

Celiac Gene Study

Here are the details of the City of Hope celiac gene test study for first-degree relatives of individuals diagnosed with celiac disease. There is specific criteria -- at least two people in the person's family must be prediagnosed with celiac disease to allow the gene testing of other individuals in the family.

CELIAC FAMILY STUDY

DOES YOUR FAMILY STRUGGLE WITH CELIAC DISEASE OR

DERMATITIS HERPETIFORMIS?

Investigators at the City of Hope are seeking families with at least two individuals who have been diagnosed with celiac sprue or dermatitis herpetiformis to participate in a genetic study of celiac disease. The study is designed to identify factors associated with celiac disease and to find genes that may predispose individuals and their relatives to develop this condition. The discovery of such genes may one day lead to better diagnosis, treatment, and possibly even prevention of celiac disease.

Families eligible to participate in this celiac study must have at least two relatives (with the exception of simple parent-child pairs) diagnosed with celiac sprue or dermatitis herpetiformis by at least one of the following methods: a small intestinal biopsy, a positive transglutaminase (tTG) antibody test, a positive endomysial (EMA) antibody test, or a positive skin biopsy (for dermatitis herpetiformis). After meeting the eligibility criteria to enroll a family, all first degree relatives of those who have been diagnosed with celiac sprue or dermatitis herpetiformis will be invited to participate in the study. These participants will receive a free antibody test for screening of celiac disease if they are not currently on a gluten free diet and have not recently been tested for celiac sprue.

If you are interested in participating, or have questions about the study, please contact Elizabeth Bustamante at City of Hope: ebustamante@coh.org or (626) 471-9262 or toll-free at (866) 356-9962 or Linda Steele at (626) 471-9264 or toll-free at (800) 844-0049.

Monday, May 2

Gluten Free Ramblings - New Blog Recommendation

Tania Larsen really did a great compilation of studies on the dangers of cheating with CD.
Here is a synopsis of her results and her web site blog link:

origin=gateway&_sort=d&_docanchor=&view=c&_searchStrId=1724187555&_rerunOrigin=scholar.google&_acct=C000038819&_version=1&_urlVersion=0&_userid=696292&md5=65ae5a721dcdc54dc5fe97154dc4aba4&searchtype=a"Children and adolescents not strict GFD are at increased risk for low BMD" — http://www.gfdoctor.com/bone-mineral-density-and-importance-of-strict

Friday, April 1

Our BIG FAT Gluten Toxic FAMILY

WOW!

We've done it! Our family has received the dubious honor of being so afflicted with gluten intolerance that our whole family has qualified for a gluten-free study! Great Grandma had it, her three children all have it and since Grandma has it, all the children (eight of us) can be DNA tested. Those of us who are currently positive for celiac disease (three of us) will be given a maintenance iga/tTg to check the blood gliadins and and everyone else will be tested for titers indicating active cd.

In addition, any of us with symptoms or other autoimmune disorders can also be tested. That means the type 1 diabetic nephew, the Lupus, and Crohn's members.

The purpose of this study is to try to determine why 30% of all blood test samples manifest with positive celiac genes, but only 10% demonstrate positive tTg's.

Duh! Those of us afflicted with this disease know that the blood test is the final indicator of illness. It's like saying, "You have cancer, but don't worry, you haven't metastasized yet," so let's wait to treat it until it shows up in the blood.

I tried to be polite and stifle my frustration as I said, "Could it be because people with positive DNA results become progressively sicker and current blood tests are notoriously inaccurate?" (Speaking as a person whose kids were symptomatic-yet seronegative for 10 years prior to dna/stool testing.) The director of the study did say that it was her personal opinion that there may be a possible continuum associated with this disease.

Ya Think?
Now I just have to wonder why the study doesn't use the latest and greatest most accurate test-a DGP deanimated gliadin peptide or the newest saliva test as an indicator. It seems to the layman that the everyone is running backward in this disease... but what would I know?

Saturday, February 19

Gluten-free Hospital Stay


My Gluten-Free Mother (the Second Generation) just had surgery last week. We joke that it was a nose job, on the inside, not the out and so the discussion on being gluten-free at the hospital was raised. Read more below:

Most precipitously that week, I received an email link online about this very topic enumerating the difficulties. Once I did my research I found a disturbing trend. I've not run into many (any) who had a successful experience eating hospital food. (Some horror stories are worse than others.)

The discussion group in DC (if you aren't a member, you really should attach yourself to that one--for knowledge and information, I find it very enlightening,) is currently stitching a thread about this very subject.

You can search for a hospital's legal obligations, fiduciary duty, responsible parties and other big words by googling hospitals gluten-free, but I'll give you the gist of it in a nutshell.

DON'T TRUST YOUR HOSPITAL TO FEED YOU. The gorgeous sister-in-law works at Primary Children's Hospital in Utah and from her very lips I hear the difficulties they have with dietary restrictions--sorting trays--delivering meals and juggling food. "And then some wiseacre gave them the idea of offering actual menu choices..." Some days she says that it's all up in the air at once.

Most of these service people (from the preparers to the servers) are minimally trained, and they feed hundreds, if not thousands of people, repeatedly every day.

So if you want to be healthy and get out of that place quickly, plan to take care of your own dietary needs. I know it's hard to add that burden on, but who wants to come out of that place sicker?

Remember to plan in advance with your physician for all of your potential G-F medications and other necessities at glutenfreedrugs.com.

Good luck and P.S. Mom smells wonderfully.

Wednesday, January 12

ITS HERE!!!!!!!! The Saliva Test!!!!!!!

FINALLY FINALLY! The gluten-sensitive saliva test is available!!!
There would be fireworks going off here if I knew how to make them. Since I don't, and I'd rather bake than learning, here is a link to an animation of fireworks.

CLICK HERE -> -> Cyrexlabs.com

For those of you who are new to the blog, you may not know how I have waited--nay, hungered ravenously for this test. First degree relative can now be tested for gluten sensitivity without leaving the comfort of their own home and for a relatively lesser cost.

It was first introduced to me at a celiac conference, by Dr. Tom O'Bryan last year. I was impressed by it's history and the increased specificity and sensitivity to detect gluten sensitivity. I also like the fact that it was promised at 99 bucks and is only a spit test. (We're still waiting to see the cost.)

See more info on the history below. YAY!

http://gluten-free-reality.blogspot.com/2010/04/saliva-test.html



Gluten Ataxia Survey

I just got this email. Some of my family suffer from ataxia, so I'm including it here.

__________________________
Ever feel groggy or forgetful after gluten exposure? Help doctors unlock this neurological mystery.

Although many patients with celiac disease and gluten intolerance report experiencing “brain fog,” the term is not well understood in the medical community.

In discussion with The Celiac Center at Beth Israel Deaconess Medical Center (BIDMC), the National Foundation for Celiac Awareness (NFCA) has recognized that this is an important area in need of dedicated study. In an effort to provide some of the information needed to carry out these studies, NFCA is collecting information from people with celiac disease about this important symptom.

Please take a moment to answer this brief survey. The survey should take no longer than 5 minutes to complete.

http://bit.ly/dO5Vrt

Wednesday, December 15

NAET Gluten-Free Treatment Ineffective

I have been investigating alternate treatments for gluten sensitivity allergy and celiac disease. I was first introduced to this procedure N.A.E.T. through a chiropractor in Wyoming early in 2007. I have not myself ever participated, but have watched the procedure done.

http://www.naet.com/

I have a friend who is an advocate of this procedure and she has been taking the treatments for a year. She felt success because her body responded positively, ie., she would eat gluten, and have none of her common side effects, no vomiting, no stomach pain, no headaches.

Recently she had an upper GI scope and despite no symptoms, has totally "trashed her intestines," says her GI doctor.

So, once again I must say from her experience that for me there are no easy fixes. Do the Diet or Die.